OCC Forum - 罕見病患支援區 https://www.oneclickcarehk.com/forum/forum.php?mod=forumdisplay&fid=38 Latest 20 threads of 罕見病患支援區 Copyright(C) OCC Forum Discuz! Board by Comsenz Inc. Thu, 30 Apr 2026 15:34:45 +0000 60 https://www.oneclickcarehk.com/forum/static/image/common/logo_88_31.gif OCC Forum https://www.oneclickcarehk.com/forum/ 亨廷頓舞蹈症患者、小腦萎縮症患者一大喜訊！！ https://www.oneclickcarehk.com/forum/forum.php?mod=viewthread&tid=1602 罕見病患支援區 occadmin Wed, 26 May 2021 05:48:54 +0000 【罕病小故事】- Lifewire https://www.oneclickcarehk.com/forum/forum.php?mod=viewthread&tid=1600 罕見病患支援區 occadmin Sat, 15 May 2021 11:32:20 +0000 星期日檔案 - 孩子教會我們要堅強 https://www.oneclickcarehk.com/forum/forum.php?mod=viewthread&tid=1595 罕見病患支援區 occadmin Thu, 29 Apr 2021 15:58:52 +0000 六歲罕病女歷多次手術未痊癒　父當照顧者棄全職：總有... https://www.oneclickcarehk.com/forum/forum.php?mod=viewthread&tid=1581 罕見病患支援區 occadmin Mon, 22 Feb 2021 15:45:25 +0000 【罕見病】港大醫學院首次發現異位綜合症成因.... https://www.oneclickcarehk.com/forum/forum.php?mod=viewthread&tid=1571 罕見病患支援區 occadmin Sun, 17 Jan 2021 18:32:59 +0000 面色蒼白始揭患罕見骨髓衰竭病..... https://www.oneclickcarehk.com/forum/forum.php?mod=viewthread&tid=1557 罕見病患支援區 occadmin Wed, 23 Dec 2020 04:34:44 +0000 爭取逾年 罕見病者終獲軟餐........ https://www.oneclickcarehk.com/forum/forum.php?mod=viewthread&tid=1556 罕見病患支援區 occadmin Sun, 20 Dec 2020 10:53:38 +0000 【罕見肺病系列 — 肺結節病】 https://www.oneclickcarehk.com/forum/forum.php?mod=viewthread&tid=1552 罕見病患支援區 occadmin Mon, 07 Dec 2020 04:56:34 +0000 罕見病｜玻璃骨無礙成乒乓球運動員　袁泳琪：想代表香... https://www.oneclickcarehk.com/forum/forum.php?mod=viewthread&tid=1551 罕見病患支援區 occadmin Tue, 01 Dec 2020 09:55:36 +0000 鏗鏘集：我和我的1Q44 https://www.oneclickcarehk.com/forum/forum.php?mod=viewthread&tid=1547 罕見病患支援區 occadmin Tue, 24 Nov 2020 06:01:28 +0000 「新紫荊廣場 — 香港有情天環節」- 威廉氏症 https://www.oneclickcarehk.com/forum/forum.php?mod=viewthread&tid=1543 罕見病患支援區 occadmin Sun, 15 Nov 2020 11:55:55 +0000 2020年11月1日 - 醫生與你 https://www.oneclickcarehk.com/forum/forum.php?mod=viewthread&tid=1536 罕見病患支援區 occadmin Sun, 08 Nov 2020 15:16:52 +0000 香港基因組中心董事局獲政府委任 https://www.oneclickcarehk.com/forum/forum.php?mod=viewthread&tid=1535 罕見病患支援區 occadmin Sun, 08 Nov 2020 15:14:42 +0000 12歲男童患罕見病肌肉漸萎縮坐輪椅 堅持針灸。。。 https://www.oneclickcarehk.com/forum/forum.php?mod=viewthread&tid=1533 罕見病患支援區 occadmin Fri, 06 Nov 2020 05:34:04 +0000 前期病徵微易跌倒 十歲後惡化不能行 https://www.oneclickcarehk.com/forum/forum.php?mod=viewthread&tid=1532 罕見病患支援區 occadmin Fri, 06 Nov 2020 05:31:11 +0000 罹患罕見病「蝸牛仔」 坐輪椅上雪山越沙漠 https://www.oneclickcarehk.com/forum/forum.php?mod=viewthread&tid=1527 罕見病患支援區 occadmin Fri, 30 Oct 2020 12:41:58 +0000 罕科盟 貼文分享 https://www.oneclickcarehk.com/forum/forum.php?mod=viewthread&tid=1524 罕見病患支援區 occadmin Mon, 19 Oct 2020 08:51:50 +0000 【多發性硬化症】手腳麻痺年輕女性高危！視力變模糊留... https://www.oneclickcarehk.com/forum/forum.php?mod=viewthread&tid=1518 罕見病患支援區 occadmin Wed, 14 Oct 2020 09:05:54 +0000 台灣 - 薛承泰／罕見疾病走過廿年 https://www.oneclickcarehk.com/forum/forum.php?mod=viewthread&tid=1479 罕見病患支援區 occadmin Wed, 26 Aug 2020 05:54:04 +0000 吳香倫患罕見病哽咽感慨病情反覆　陳榮峻誓伴太太抗病... https://www.oneclickcarehk.com/forum/forum.php?mod=viewthread&tid=1478 罕見病患支援區 occadmin Wed, 26 Aug 2020 05:50:41 +0000